Advanced Search
Share
May - June 2013 Specific Instruments to Assess Quality of Life in Children and Adolescents with...
Journal Information
Previous article | Next article
Vol. 89. Issue 3.
Pages 217-225 (May - June 2013)
Export reference
Share
Share
Print
Download PDF
More article options
Statistics
Vol. 89. Issue 3.
Pages 217-225 (May - June 2013)
Artigo De Revisão
DOI: 10.1016/j.jpedp.2012.11.001
Open Access
Specific Instruments to Assess Quality of Life in Children and Adolescents with Asthma
Instrumentos específicos para avaliar a qualidade de vida em crianças e adolescentes com asma
Visits
6557
Download PDF
Cristian Roncadaa,
Corresponding author
crisron@gmail.com

Corresponding author.
, Rita Mattiellob, Paulo M. Pitrezb, Edgar E. Sarriab
a Doutorando, Programa de Pós-Graduação em Pediatria e Saúde da Criança, Saúde da Criança, Pontifícia Universidade Católica do Rio Grande do Sul (PUCRS), Porto Alegre, RS, Brasil
b Doutorado. Centro Infant – Instituto de Pesquisas Biomédicas, Programa de Pós-Graduação em Pediatria e Saúde da Criança, PUCRS, Porto Alegre, RS, Brasil
This item has received
6557 Visits

Under a Creative Commons license
Article information
Statistics
Abstract
Objective

To identify and describe specific instruments to assess health-related quality of life (HRQoL) in children and adolescents with asthma.

 Data source

: Searches were performed in the PubMed, Ovid, and LILACS databases using different combinations of key words (MeSH terms), selecting original articles on the development of specific HRQoL questionnaires, published in English, Portuguese, or Spanish, between 1990 and 2012.

 Data synthesis

: A total of 15 instruments that met the inclusion criteria were identified. Most studies assessed reliability through internal consistency, reproducibility, and/ or sensitivity to changes. Validity was assessed by comparison with healthy controls (discordant validity) or factorial analysis.

 Conclusions

Of the 15 instruments, three are the most frequently used: Pediatric Asthma Quality of Life Questionnaire (PAQLQ), Pediatric Quality of Life Inventory 4.0 (PedsQL- Asthma), and Disability Kids (DISABKIDS). In general, these three tools have adequate psychometric characteristics and are practical to implement, but only PAQLQ has been culturally adapted to Brazil.

Keywords:
Asma
Qualidade de vida
Criança e adolescente
Keywords:
Asthma
Quality of life
Child and adolescent
Resumo
Objetivo

: Identificar e descrever os instrumentos específicos que avaliam a QVRS de crianças e adolescentes com asma.

 Fontes dos dados

: Realizamos buscas nas bases de dados PubMed, Ovid e LILACS utilizan- do várias combinações de descritores (MeSH terms), selecionando artigos originais sobre desenvolvimento de questionários específicos de QVRS, publicados em inglês, português ou espanhol, entre 1990 e 2012.

 Síntese dos dados

: Foram identificados 15 instrumentos que preencheram os critérios de inclusão. A maioria dos estudos avaliou confiabilidade mediante consistência interna e/ ou reprodutibilidade e/ou sensibilidade às mudanças. A validade foi avaliada mediante a comparação com hígidos (validade discordante) ou análise fatorial.

 Conclusões

: Dos 15 instrumentos, três são os mais utilizados, o PAQLQ, o PedsQL-Asthma e DISABKIDS. Em geral, estes três instrumentos possuem características psicométricas adequadas e são práticos de aplicar, mas apenas o PAQLQ completou a adaptação cul- tural para o Brasil.

Full text is only aviable in PDF
Referências
[1]
R. Levi, D. Drotar.
Critical issues and needs in health-related quality of life assessment of children and adolescents with chronic health conditions.
Measuring health- related quality of life in children and adolescents: implication for research and practice.,
[2]
S. Saxena, J. Orley.
WHOQOL Group. Quality of life assessment: the world health organization perspective. Eur Psychiatry, 12 (1997), pp. 263s-266s
[3]
H. Schipper, J.J. Clinch, C.L. Olweny.
Quality of life studies: definitions and conceptual issues.
Quality of life and pharmacoeconomics in clinical trials., 2nd edn,
[4]
P.M. Fayers, D. Machin.
Front Matter.
Quality of life: The assessment, analysis and interpretation of patient-reported outcomes., 2nd ed.,
[5]
Worldwide variation in prevalence of symptoms of asthma, allergic rhinoconjunctivitis, and atopic eczema: ISAAC. The International Study of Asthma and Allergies in Childhood (ISAAC) Steering Committee. Lancet. 1998;351:1225-32.
[6]
M.N. Chatkin, A.M. Menezes.
Prevalência e fatores de risco para asma em escolares de uma coorte no sul do Brasil.
J Pediatr (Rio J)., 81 (2005), pp. 411-416
[7]
O. Chassany, P. Sagnier, P. Marquis, S. Fullerton, N. Aaronson.
Patient-reported outcomes: the example of health-related quality of life: a European guidance document for the improved integration of health-related quality of life assessment in the drug regulatory process.
Drug Inf J., 36 (2002), pp. 209-238
[8]
C. Eiser, R. Morse.
A review of measures of quality of life for children with chronic illness.
Arch Dis Child., 84 (2001), pp. 205-211
Medline
[9]
L. Harding.
Children's quality of life assessments: a review of generic and health related quality of life measures completed by children and adolescents.
Clin Psychol Psychother., 8 (2001), pp. 79-96
[10]
L. Rajmil, M. Herdman, M.J. Fernandez de Sanmamed, S. Detmar, J. Bruil, U. Ravens-Sieberer, et al.
Generic health-related quality of life instruments in children and adolescents: a qualitative analysis of content.
J Adolesc Health., 34 (2004), pp. 37-45
Medline
[11]
C.S. La Scala, C.K. Naspitz, D. Solé.
Quality of life in asthma: how to evaluate it?.
Rev Bras Alerg Imunopatol., 27 (2004), pp. 217-230
[12]
M. Solans, S. Pane, M.D. Estrada, V. Serra-Sutton, S. Berra, M. Herdman, et al.
Health-related quality of life measurement in children and adolescents: a systematic review of generic and disease- specific instruments.
Value Health., 11 (2008), pp. 742-764
http://dx.doi.org/10.1111/j.1524-4733.2007.00293.x | Medline
[13]
L. Rajmil, M. Roizen, A.U. Psy, C. Hidalgo-Rasmussen, G. Fernández, J.J. Dapueto, et al.
Health-related quality of life measurement in children and adolescents in Ibero-American countries, 2000 to 2010.
Value Health., 15 (2012), pp. 312-322
http://dx.doi.org/10.1016/j.jval.2011.11.028 | Medline
[14]
D.L. Streiner, G.R. Norman.
Health measurement scales: a practical guide to their development and use.
4th edn., Oxford University Press, (2008),
[15]
L. Pasquali.
org Técnicas de exame psicológico (TEP): manual. Volume I: Fundamentos das técnicas psicológicas.
Casa do Psicólogo, (2001),
[16]
A.P. Noronha, C.M. Vendramini.
Psychometric parameters: comparative study between intelligence and personality tests.
Psicol Reflex Crit., 16 (2003), pp. 177-182
[17]
Pasquali L. Psicometria: teoria dos testes na psicologia e na educação. Petrópolis, RJ: Vozes; 2009.
[18]
C. Rutishauser, S.M. Sawyer, L. Bond, C. Coffey, G. Bowes.
Development and validation of the Adolescent Asthma Quality of Life Questionnaire (AAQOL).
Eur Respir J., 17 (2001), pp. 52-58
Medline
[19]
A. Somerville, B. Knöpfli, C. Rutishauser.
Health-related quality of life in Swiss adolescents with asthma Validation of the AAQOL-D and comparison with Australian adolescents.
Swiss Med Wkly., 134 (2004), pp. 91-96
http://dx.doi.org/2004/07/smw-10463 | Medline
[20]
S.C. Mishoe, R.R. Baker, S. Poole, L.M. Harrell, C.B. Arant, N.T. Rupp.
Development of an instrument to assess stress levels and quality of life in children with asthma.
J Asthma., 35 (1998), pp. 553-563
Medline
[21]
L.C. Chiang, L.F. Tzeng, L.S. Fu, J.L. Huang.
Testing a questionnaire to measure asthma-related quality of life among children.
J Nurs Scholarsh., 38 (2006), pp. 383-386
Medline
[22]
T.P. Usherwood, A. Scrimgeour, J.H. Barber.
Questionnaire to measure perceived symptoms and disability in asthma.
Arch Dis Child., 65 (1990), pp. 779-781
Medline
[23]
M.J. Christie, D. French, A. Sowden, A. West.
Development of child- centered disease-specific questionnaires for living with asthma.
Psychosom Med., 55 (1993), pp. 541-548
Medline
[24]
D.J. French, M.J. Christie, A.J. Sowden.
The reproducibility of the Childhood Asthma Questionnaires: measures of quality of life for children with asthma aged 4-16 years.
Qual Life Res., 3 (1994), pp. 215-224
Medline
[25]
K.T. Petsios, K.N. Priftis, C. Tsoumakas, A. Perperoglou, E. Hatziagorou, J.N. Tsanakas, et al.
Cough affects quality of life in asthmatic children aged 8-14 more than other asthma symptoms.
Allergol Immunopathol (Madr)., 37 (2009), pp. 80-88
Medline
[26]
R.M. Baars, C.I. Atherton, H.M. Koopman, M. Bullinger.
Power M; DISABKIDS group The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents.
Health Qual Life Outcomes., 3 (2005), pp. 70
http://dx.doi.org/10.1186/1477-7525-3-70 | Medline
[27]
E.M. le Coq, V.T. Colland, A.J. Boeke, P. Boeke, D.P. Bezemer, J.T. van Eijk.
Reproducibility, construct validity, and responsiveness of the “How Are You?.” (HAY), a self-report quality of life questionnaire for children with asthma.
J Asthma., 37 (2000), pp. 43-58
Medline
[28]
D.A. Bukstein, M.M. McGrath, D.A. Buchner, J. Landgraf, T.F. Goss.
Evaluation of a short form for measuring health-related quality of life among pediatric asthma patients.
J Allergy Clin Immunol., 105 (2000), pp. 245-251
Medline
[29]
S.E. Hullmann, J.L. Ryan, R.R. Ramsey, J.M. Chaney, L.L. Mullins.
Measures of general pediatric quality of life: Child Health Questionnaire (CHQ), DISABKIDS Chronic Generic Measure (DCGM), KINDL-R Pediatric Quality of Life Inventory (PedsQL). [4. 0] Generic Core Scales, and Quality of My Life Questionnaire (QoML).
Arthritis Care Res (Hoboken)., 63 (2011), pp. S420-S430
http://dx.doi.org/10.1002/acr.20637 | Medline
[30]
U. Ravens-Sieberer, M. Redegeld, C. Bauer, H. Mayer, R. Stachow, D. Kiosz, et al.
Lebensqualität chronisch kranker Kinder und Jugendlicher in der Rehabilitation.
Z Med Psychol., 14 (2005), pp. 5-12
[31]
T.L. Creer, J.K. Wigal, H. Kotses, J.C. Hatala, K. McConnaughy, J.A. Winder.
A life activities questionnaire for childhood asthma.
J Asthma., 30 (1993), pp. 467-473
Medline
[32]
C.F. Chiou, M.R. Weaver, M.A. Bell, T.A. Lee, J.W. Krieger.
Development of the multi-attribute Pediatric Asthma Health Outcome Measure (PAHOM).
Int J Qual Health Care., 17 (2005), pp. 23-30
http://dx.doi.org/10.1093/intqhc/mzh086 | Medline
[33]
E.F. Juniper, G.H. Guyatt, D.H. Feeny, P.J. Ferrie, L.E. Griffith, M. Townsend.
Measuring quality of life in children with asthma.
Qual Life Res., 5 (1996), pp. 35-46
Medline
[34]
E.F. Juniper, G.H. Guyatt, D.H. Feeny, P.J. Ferrie, L.E. Griffith, M. Townsend.
Measuring quality of life in the parents of children with asthma.
Qual Life Res., 5 (1996), pp. 27-34
Medline
[35]
J.W. Varni, T.M. Burwinkle, M.A. Rapoff, J.L. Kamps, N. Olson.
The PedsQL in pediatric asthma: reliability and validity of the Pediatric Quality of Life Inventory generic core scales and asthma module.
J Behav Med., 27 (2004), pp. 297-318
Medline
[36]
M. Asano, T. Sugiura, K. Miura, S. Torii, A. Ishiguro.
Reliability and validity of the self-report Quality of Life Questionnaire for Japanese School-aged Children with Asthma (JSCA-QOL v.3).
Allergol Int., 55 (2006), pp. 59-65
http://dx.doi.org/10.2332/allergolint.55.59 | Medline
[37]
Vogels T, Verrips GH, Koopman HM, Theunissen NC, Fekkes M, Kamphuis RP. TACQOL manual: parent form and child form. Leiden: Leiden Center for Child Health and Pediatrics LUMC- TNO; 2000.
[38]
E.E. Sarria, R.C. Rosa, G.B. Fischer, V.N. Hirakata, N.S. Rocha, R. Mattiello.
Field-test validation of the Brazilian version of the Paediatric Asthma Quality of Life Questionnaire.
J Bras Pneumol., 36 (2010), pp. 417-424
Medline
☆

Como citar este artigo: Roncada C, Mattiello R, Pitrez PM, Sarria EE. Specific tools to assess quality of life in children and adolescents with asthma. J Pediatr (Rio J). 2013;89:217-25.

Copyright © 2013. Sociedade Brasileira de Pediatria

Subscribe to our newsletter

Recommended
articles
Prevalence and impact of asthma in schoolchildren in the...
J Pediatr (Rio J). 2020;96:479-86
Impact of chronic kidney disease on health-related quality...
J Pediatr (Rio J). 2021;97:478-89
Impact of intervention on nutritional status, consumption...
J Pediatr (Rio J). 2020;96:621-9
Publish in
Jornal de Pediatria
ORIGINAL ARTICLES
South Cone Section
Selected articles published in pediatric journals of the South Cone
Read selection
Issue nº 1
Download issue nº 1 of Jornal de Pediatria, 1934
Year
1934
Jornal do Pediatria nº1
Download PDF
Idiomas
Jornal de Pediatria (English Edition)
Article options
Tools
en pt
Taxa de publicaçao Publication fee
Os artigos submetidos a partir de 1º de setembro de 2018, que forem aceitos para publicação no Jornal de Pediatria, estarão sujeitos a uma taxa para que tenham sua publicação garantida. O artigo aceito somente será publicado após a comprovação do pagamento da taxa de publicação. Ao submeterem o manuscrito a este jornal, os autores concordam com esses termos. A submissão dos manuscritos continua gratuita. Para mais informações, contate assessoria@jped.com.br. Articles submitted as of September 1, 2018, which are accepted for publication in the Jornal de Pediatria, will be subject to a fee to have their publication guaranteed. The accepted article will only be published after proof of the publication fee payment. By submitting the manuscript to this journal, the authors agree to these terms. Manuscript submission remains free of charge. For more information, contact assessoria@jped.com.br.
Cookies policy Política de cookies
To improve our services and products, we use "cookies" (own or third parties authorized) to show advertising related to client preferences through the analyses of navigation customer behavior. Continuing navigation will be considered as acceptance of this use. You can change the settings or obtain more information by clicking here. Utilizamos cookies próprios e de terceiros para melhorar nossos serviços e mostrar publicidade relacionada às suas preferências, analisando seus hábitos de navegação. Se continuar a navegar, consideramos que aceita o seu uso. Você pode alterar a configuração ou obter mais informações aqui.