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Vol. 89. Núm. 3.Maio - Junho 2013
Páginas 211-326
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Vol. 89. Núm. 3.Maio - Junho 2013
Páginas 211-326
Artigo De Revisão
DOI: 10.1016/j.jpedp.2012.11.001
Specific Instruments to Assess Quality of Life in Children and Adolescents with Asthma
Instrumentos específicos para avaliar a qualidade de vida em crianças e adolescentes com asma
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Cristian Roncadaa,
Autor para correspondência
crisron@gmail.com

Corresponding author.
, Rita Mattiellob, Paulo M. Pitrezb, Edgar E. Sarriab
a Doutorando, Programa de Pós-Graduação em Pediatria e Saúde da Criança, Saúde da Criança, Pontifícia Universidade Católica do Rio Grande do Sul (PUCRS), Porto Alegre, RS, Brasil
b Doutorado. Centro Infant – Instituto de Pesquisas Biomédicas, Programa de Pós-Graduação em Pediatria e Saúde da Criança, PUCRS, Porto Alegre, RS, Brasil
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NOTICE Undefined index: ITEMS (includes_ws_v2/librerias/html/item.php[997])
Abstract
Objective

To identify and describe specific instruments to assess health-related quality of life (HRQoL) in children and adolescents with asthma.

Data source

: Searches were performed in the PubMed, Ovid, and LILACS databases using different combinations of key words (MeSH terms), selecting original articles on the development of specific HRQoL questionnaires, published in English, Portuguese, or Spanish, between 1990 and 2012.

Data synthesis

: A total of 15 instruments that met the inclusion criteria were identified. Most studies assessed reliability through internal consistency, reproducibility, and/ or sensitivity to changes. Validity was assessed by comparison with healthy controls (discordant validity) or factorial analysis.

Conclusions

Of the 15 instruments, three are the most frequently used: Pediatric Asthma Quality of Life Questionnaire (PAQLQ), Pediatric Quality of Life Inventory 4.0 (PedsQL- Asthma), and Disability Kids (DISABKIDS). In general, these three tools have adequate psychometric characteristics and are practical to implement, but only PAQLQ has been culturally adapted to Brazil.

:
Asma
Qualidade de vida
Criança e adolescente
Keywords:
Asthma
Quality of life
Child and adolescent
Resumo
Objetivo

: Identificar e descrever os instrumentos específicos que avaliam a QVRS de crianças e adolescentes com asma.

Fontes dos dados

: Realizamos buscas nas bases de dados PubMed, Ovid e LILACS utilizan- do várias combinações de descritores (MeSH terms), selecionando artigos originais sobre desenvolvimento de questionários específicos de QVRS, publicados em inglês, português ou espanhol, entre 1990 e 2012.

Síntese dos dados

: Foram identificados 15 instrumentos que preencheram os critérios de inclusão. A maioria dos estudos avaliou confiabilidade mediante consistência interna e/ ou reprodutibilidade e/ou sensibilidade às mudanças. A validade foi avaliada mediante a comparação com hígidos (validade discordante) ou análise fatorial.

Conclusões

: Dos 15 instrumentos, três são os mais utilizados, o PAQLQ, o PedsQL-Asthma e DISABKIDS. Em geral, estes três instrumentos possuem características psicométricas adequadas e são práticos de aplicar, mas apenas o PAQLQ completou a adaptação cul- tural para o Brasil.

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Como citar este artigo: Roncada C, Mattiello R, Pitrez PM, Sarria EE. Specific tools to assess quality of life in children and adolescents with asthma. J Pediatr (Rio J). 2013;89:217-25.

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